Showing posts with label Multiple Sclerosis. Show all posts
Showing posts with label Multiple Sclerosis. Show all posts

Sunday, April 22, 2012

V.A. / DOD and Multiple Sclerosis?

The VA and the Department Of Defense must possess information that they're not sharing with the rest of us and certainly not with the new enlistees. I know the Sergeant isn't telling new recruits that they should look out for MS, as they do with AIDS or syphilis. If there is a chance that MS might be contracted or complicated by their time in military service, then why aren't enlistees told this? Would this complicate the recruitment process? Probably, but I have the sneaking suspicion that it would complicate something far more important to the modern Armed Forces: vaccinations. This is the one factor, aside from the traditional haircut, that all service folks have in common. If, as some believe, the causative agent is a mycoplasma, vaccinations could conceivably be the mode of transmission.
What bothers me most is that I'm sure the VA and the DOD have research that justifies granting this disability to thousands of veterans. If they have information that connects MS to military service, then we should all know what that information is. Multiple Sclerosis is a serious and growing disorder that afflicts millions of persons. To purposefully withhold information that would better our understanding of this disease is unjustified.

Thursday, April 19, 2012

Nearing the end for me?

I was so proud 29 years ago when I became a U.S. Marine. Now that I am a quadriplegic from my service its amazing how they, the "@DeptVetAffairs" and "@DeptofDefense" just turn a blind eye and deaf ears to me?  I was told my condition was service related and approved until a V.A. Dr. Lied about my medical condition. "He will be sued"  The OKC V.A. even offered my daughter payment for taking care of me "Tax Free" we were told.  Now 4 years later we are told that she owes back taxes on that money? She gave up her career for me to keep me out of a nursing home, what a kick in the guts. What will become of us?....Would not claim #PTSD but over the 8 years my case has been in appeal,  the @DeptVetAffairs rating evaluation doctor and my @PVA1946 officer has made me sick with untruths and delays.

Tuesday, April 17, 2012

VA is killing me!

Aid and Assistance

This was transferred from Okc VA to Muskogee, when this was started in Okc we were told "Three of us" it was non-taxable and was told nothing about it being monitored. Now Val, my daughter/caregiver  is in tax trouble, I had a doctor lie to the board of appeals about me, have my social security garnished for my meds and I proved my case years ago and even had a witness.

The Marine Corps caused and or exposed this illness, now I sit here, a bag of bones no therapy feeling like I've been put on hospice care and forgotten. Is this the end for me?

Now it looks like I'm going to have to sell everything I own/have left to hire an attorney to help us with this  mess.

Friday, March 30, 2012

More Appeal time with @DeptVetAffairs

Shot down by @DeptVetAffairs again. Its not over, ive got 8 more years and plenty of pain meds.  lets roll!
Unless of course I die first, (that's what they would like to see), then my family takes over :-)

My case was approved until a V.A. doctor examined me and fabricated a false report. I have 2 witnesses to the visit, so why keep wasting my time and theirs?

Thursday, February 16, 2012

Courage

"Don't let others label you; they will definitely try! Have the courage to create and live your own reality."

Thursday, February 9, 2012

Its just that simple!

“It is the established policy of the Department of Veterans Affairs that all veterans who are unable to secure and follow a substantially gainful occupation by reason of service-connected disabilities shall be rated totally disabled.”  I've proved it, docs and witness statements. 8 years and counting...

Tuesday, January 24, 2012

Why

@DeptVetAffairs  Why do 3 vets I know play golf, go to casinos and do what normal men do while they are 100% disabled when I sit in a wheel chair unable to feed, dress or even drive my chair.  Yet my case sits in appeal for 8 years with plenty of proof while I slowly rot and survive on pain medication losing every thing I have?

Friday, January 20, 2012

Interesting info from the @DeptVetAffairs

Department of Veterans Affairs VHA HANDBOOK 1011.06
Veterans Health Administration Transmittal Sheet
Washington, DC 20420 December 7, 2009




Common MS symptoms include fatigue, cognitive impairment, mood disorders, visual difficulties, motor and sensory deficits, incoordination, gait dysfunction, speech and swallowing deficits and impairments of bowel and bladder control as well as sexual functioning. Because the symptoms of MS are diverse, and occur dynamically over the course of many decades, patients are optimally managed in a comprehensive and specialized center.


Background and Assumptions: Based on the 2006 National Ambulatory Medical Care Survey conducted by the National Center for Health Statistics, MS is the seventh most common disorder to be evaluated by neurology specialists, making up 6 percent of all referrals. Patients with MS have variable degrees of disability with complex symptoms and histories. The VA MS population is more disabled than the MS population in the private sector. The average MS disability is 0.5-1.0 points higher on the Patient Determined Disease Steps among Veterans with MS compared to non-Veterans. MS is a dynamic disease with relapses and remissions early in the course but ultimately progression in neurological disability ensuing in most individuals.

Tuesday, January 17, 2012

New hope?

Scientists at Purdue University have found that an experimental drug may be able to restore function in people who have experienced spinal cord injury, and may be beneficial for those with multiple sclerosis as well. The medication prevents short circuits in the damaged nerves.
A type of spinal cord trauma called compression injury is the type of injury responsible for many spinal cord injuries. In a compression injury, the nerves are not severed, so they are easier to work with. The compound is called 4-aminopyridine-3-methyl hydroxide, and in guinea pig spinal cord tissue, it showed restored function to damaged axons.
Riyi Shi, a professor in Purdue University said the findings were made possible because of the cooperation at Purdue. The research was completed by many scientists from the medicinal chemistry, physical pharmacy, biomedical engineering, chemistry, and neurology departments.
The researchers stressed the spinal cord tissue to duplicate what happens in a compression injury that often results in paralysis. After, they treated the damaged cells with 4-aminopyridine-3-methyl hydroxide. The axons, which are covered in myelin, which is a fatty insulation that is damaged in spinal cord trauma, shrinks when injured. The experimental drug prevents the uninsulated nerves from leaking electrical current. This improves the conduction of electricity around the spinal cord.
The new drug is much more potent than previous medications used to treat MS.
“The compound could make it possible to sidestep spinal cord damage by enabling axons to transmit signals as though they were still sheathed in myelin. As a result, the damaged nerves perform more like healthy nerves than those treated with other drugs,” Shi said.
The research, which was featured in the November issue of the Journal of Neurophysiology, was funded by the Purdue Research Foundation and the National Institutes of Health.

Saturday, January 7, 2012

Routine

Up at 7:00 checking e-mail, twitter and face book, the friends help brighten what I know will be a day of trying to make ends meet because the Board of Veterans Appeals holds the key to my future. This happens daily and has for 8 years. I thank God for my family and the anti-depressants and pain meds that keep me in my wheel chair doing my designs and such. With out the previous mentioned 4 things life would not be much fun.

I know things could be much worse and I pray for those who are in much worse shape than I am.
If given the chance I am going to find ways to help people who suffer from illness and disease just like I promised the Lord I would. I am working now on a project to get hands free computer control equipment for paralyzed children and Vets.

Im putting some designs for sale because the Board of Vet. Appeals doesn't get in a hurry nor do they care if I loose everything. My art

Never say "Quit"

Wednesday, December 21, 2011

Why do they take care of us? Are they hiding something..

The VA provides health care services to Veterans with MS from the time of diagnosis throughout their life, whether or not they have a service-connected or non-service connected status.  If an individual had symptoms of MS in the military, or within seven years after honorable discharge, he or she may be eligible for service-connected disability.
MS Activist